Showing posts with label education. Show all posts
Showing posts with label education. Show all posts

Monday, September 12, 2011

We Shall See

Apparently I ruffled some feathers last week with all my calls and emails about school bus schedules. On Friday, I got a call from the head of transportation and one from the director of special ed. The special ed director even offered compensatory services for the time that Ronnie has missed by being at least 30 minutes late for school each morning.

After I arrived home from work, I got a phone call from the second in command of transportation. That gentleman said that beginning Tuesday, Ronnie would have a different bus and a different schedule. The new schedule has him being picked up at 8:17am.

Of course, the first bus had a promised schedule of 8:20 am so I guess I will have to wait and see if the new bus will actually be on time. I sure hope so...

*****************************

The weekend was difficult with all the 9-11 tributes. I watched hours of shows, almost as much as I watched when the events were originally unfolding. My grief and sadness was just a raw as it was then, and the tears just as plentiful.

*****************************


When I wasn't watching the 9-11 tributes, I was absorbed by my own little marathon of The Good Wife. I never watched the show when it was on TV, but several months ago, I started watching season one on Netflix. After just a couple of shows, I was hooked. I couldn't wait for season two to come out on DVD, which it did this weekend. Now I just have to get in 16 shows before season three starts this coming Sunday!!

Friday, September 9, 2011

The Clock Is Ticking


It’s the end of the first week back at school, and for the three of my children still in the public school system, almost everything has gone very well. But, the one thing that hasn’t gone well is very very not well.

In my town, high school starts at 8:45 am. The past two years, Ronnie and Ashley went to the same high school and were picked up by the same accessible bus. The bus driver knew my family well, and understood that as a single parent, getting to work on time was important. He changed his route schedule just a bit to pick Ronnie and Ashley up first. That allowed me to get to work on time. Not so this year….

The problems started the Friday before school was scheduled to start. As I always do, I called transportation to verify that I still had the correct bus numbers and schedules. Ronnie moved to a new high school this year, so I was dealing with two bus numbers and schedules.

When I called, the transportation office gave me the bus number and pickup time for Ashley – bus number 1980 and pickup at 8:16 am. That was going to be a problem by preventing me arriving at work by 8:30 am. But, I figured I would let the transportation issues settle in the first week, and then I would make my request for an earlier pickup.

Next, I asked for Ronnie’s bus information. “Ronnie who?”, they said. Even though his IEP denotes special transportation with pickup and drop off at home, there was no record of that need. I tried to reason – I called the school teacher and principal – I got angry – and then I drew a line in the sand. Ronnie would not be at school the first day unless someone picked him up.

Perhaps as retribution for that line in the sand, on Monday (Labor Day) I got a call saying bus 300 would pick him up at 8:20 am. Again, that’s a problem for me getting to work on time, but again, I decided to let things ride for the first week.

Here’s how the first week went:

Tuesday – Ashley picked up at 8:30am, 14 minutes late. Ronnie picked up at 8:55 am, 35 minutes late and 10 minutes past the start of school. Once he arrived at the school, I estimate he was about 30 minutes late for school.

Wednesday – Ashley picked up at 8:25 am, 9 minutes late. Ronnie picked up at 8:50 am, 30 minutes late, and again, late for school.

Thursday – Ashley picked up at 8:25 am, 9 minutes late. Ronnie picked up at 8:45 am, 30 minutes late and again, late for school.

I’ve called and emailed and whined and begged and been professional all the while. The only response I get from transportation is that they are discussing to see if there are any other options.

Well, school district, here’s an option – you are not providing services as outlined in Ronnie’s IEP since he is late getting to school each day. I feel a state Department of Education complaint brewing, and compensatory time building.

Tuesday, August 2, 2011

A Change For The Worse


Yesterday was the first day of the second summer school session in my school district. The first session lasts four weeks and the second session last three weeks. I have no idea why it is broken into two sessions.

I have no idea if Ashley has the same teacher and the same aide for the second session. Of course, I have no idea if she even has an aide. I’ve never gotten a report from or about that person.

I have no idea what Ashley did in the first four weeks and I have no idea what the plans are for the last three weeks of summer school. I’ve gotten no reports other than a vague, “Ashley is doing well” from the first teacher. I wonder what she is doing well at?

I have no idea if Ashley is eating her lunch at school other than the fact that her lunchbox comes home empty each day.

I have no idea if sunscreen is being used when Ashley is outside other than the fact that she hasn’t come home sunburned. But I guess that could mean that she hasn’t actually been outside.

I have no idea if Ashley has had one seizure, 10 seizures, or more at school. I’ve not heard from the nurse (if there is a nurse) or the teacher other than the time I was requested to fill out a “seizure plan”. I guess I should have noted on the form that I would like to know if a seizure occurred.

I have no idea if Ashley interacts with the other students at summer school, if anyone facilitates communication between Ashley and the hearing students or if she uses her cane.

What I do know is that Ashley has come home several times with injuries, some bordering on significant. I know she has come home with a torn pull-up and wet clothes, even though I always pack a change of clothes and extra pull-ups. I know that she doesn’t seem thrilled with the prospect of going to summer school, but during the regular school year, she loved going to school. I know that the only progress on her communication skills have been the things I have worked on with her over the summer. And I wonder if I will get an updated progress report on her IEP at the end of summer school.

To say that I am not thrilled with the services Ashley is receiving this summer is an understatement. I know that there has been a change in administration as it relates to summer school services, so maybe that is the reason. But, you can bet I will make sure next summer’s IEP is very, very specific about what I expect.

Tuesday, July 12, 2011

Not Buying What You're Selling


So, yesterday I told you about Ashley's hand injury - the mystery injury that I got no note or phone call about. I sent an email, and here was the response I got:

I am very sorry to hear of Ashley’s injuries. Thank for contacting me and alerting me of your observations and concerns.

I have conferred with her assistant, the classroom staff as well as the bus driver and bus aide. No one, including myself, witnessed any accidents nor did we notice Ashley crying to indicate that she was in pain or distress. Neither I, nor any of the above mentioned staff, noticed any bruises on Ashley prior to her leaving our care on Thursday afternoon.

I took look at right hand today and did not notice any swelling but did notice that one of her fingers had a dark mark/bruise near the fingernail. It appears to be an old bruise and must have occurred during the injury you are alerting us of. I saw no other indications of injury anywhere else on Ashley prior to her leaving the classroom today.

Ashley is under the constant supervision of her 1:1 assistant thorough out the school day. The classroom staff, as well as myself, are also on hand to assist her as needed. Please be assured that Ashley’s safety and well-being is of utmost importance to us all and we will continue to work very hard to insure that she is safe and appropriately attended to.

Please let me know if you have additional concerns or questions.


I still have no explanation for the mystery injury, but I guess I'm supposed to feel all warm and fuzzy knowing just how safe she is while at summer school. Tell me, would you feel all warm and fuzzy after reading that email????

(Oh, and btw, Miss Summer School teacher, I think that the word should be 'ensure' not 'insure' in your last full paragraph...unless of course you are writing an insurance policy for Ashley, which given the mystery injury, might not be a bad idea.)

Monday, July 11, 2011

No Note, No Call, Nothing


Last week was the first week of ESY/Summer School services for Ashley. I'm used to getting a call from the teacher the week before school starts so we can chat about what I feel the teacher needs to know about Ashley. I know that the teacher is sent a copy of Ashley's IEP, but that doesn't really define who Ashley is. This year, I got no call. So, the first day of school I sent in a document that listed what I felt were important points for the teacher to know and understand.

I expected to get something back that first day - maybe a note from the teacher introducing herself, maybe a list of supplies the teacher would like help with. But I got nothing. In fact, I got nothing until the last day of school last week, and that was a quickly handwritten note from the teacher asking for spoons and wipes, and of course, the same medical form that I am asked to fill out every single school year and ESY session.

But something else of significance happened that last day of school last week. Ashley came home with three fingers on her right hand very swollen and black and blue. No mention of that was included in the note from the teacher. (The picture above was taken just as Ashley got home from school. The swelling and bruising got much, much worse as the night went on...)

I know whatever happened didn't happen on the school bus that day. The summer school bus driver and aide are wonderful beyond belief. The would have mentioned anything that might have happened to Ashley. So, it had to happen during the school day.

And just to add to my concern, Ashley has a fulltime aide with her at summer school. No note from that person either???

The injury was pretty significant. I'm sure Ashley would have cried when it happened. It looked like she had shut her hand in a door or something similar. It was so tender to the touch that it was difficult for me to get a good look at it. And no one at school felt it was important to mention this to me?

I took pictures and sent an email to the teacher asking for an explanation. I haven't heard back from her yet, but expect to today. If I don't, I will make a personal visit tomorrow.

All this - no call from the teacher, the injury, little to no communication - does not bode well for this summer's ESY services...

Tuesday, June 14, 2011

Project Search

It's amazing what a change in leadership has made in my school district. When I started this blog four years ago, I wrote many posts about the struggles and challenges of ensuring my children received an appropriate education. I survived complaints with our state department of education as well as a due process. It seemed every year got worse.

Then there was a major housecleaning at my school district's central office.

My recent posts about securing an appropriate education are much more positive. Like I mentioned last week, I'm even sad to see this school year end. And, a news story appeared last week that highlights even further the progress my school district has made.

The story was about something called Project Search -- a program to help connect high school students with Autism with perspective employers.

As parents of children with Autism know, finding employment after school ends is extremely difficult. In fact, according to one of the leaders of Project Search, 86% of students with Autism are unemployed after graduation. But Project Search is changing that.

Take a moment to read this story, and see what a positive difference the partnership between my school district, one of our local universities, and a private employer have made in the lives of eight students.



It's truly amazing what can be accomplished when everyone works together to ensure a good future for our children!

Friday, June 10, 2011

Sad to See it End

This is the first year that I have been sad to see school end for Ashley. Really..can you believe I just made that statement???



Ashley's teacher is wonderful. She is the first teacher that has ever - EVER - taken a real interest in learning how to effectively teach Ashley. That teacher has also decided to pursue a Masters degree in Reading and Literacy with a focus on students with deafblindness.

Whoa! Sounds almost like the Twilight Zone, or like maybe I am caught in a dream.

The changes in Ashley have been monumental because of this teacher. And, the high school Ashley attends is very inclusive. Yesterday, the PTA gave out tee-shirts to the kids that had the words, "J.R. Tucker, Henrico Countyis Best Kept Secret." And it really is that.

So thank you, Mrs. Marsh. Thank you to all the teachers and staff who have made a difference in Ashley's life. Thank you to the clinic nurse and staff for taking such good care of my daughter this school year. Thank you to the administration for the support you show your teachers and staff, and for knowing personally who Ashley is. I know in a large school that it must be difficult to know all the students, but somehow you make it happen. Thank you to the bus drivers and aides. And thank you, other students, who called Ashley your friend.

We will miss you all, but look forward to September!

Friday, April 15, 2011

IEP Squared


One week - two IEP meetings - I'm tired but very glad that all is done for another year.

Ashley's IEP meeting was today. If you've been a longtime reader of my blog, you know that Ashley's educational program has been a challenge. Throughout the years, I've had to file complaints with my state education department and also dealt with a due process. For every year things would go well, there would be two horrible years. But all that was before Ashley went to high school.

She finally has a teacher that is well-versed in teaching children with deafblindness. She cares and she has high expectations for Ashley. Last year and this year, Ashley has made more progress than she made during the whole rest of her school career.

Today's IEP meeting went very well. Everyone was in agreement as to what Ashley needed, and Ashley's teacher did a wonderful job of creating an IEP - the best IEP Ashley has EVER had!

Ashley will be staying in our neighborhood school. She has made many friends, and will continue to see those friends next year. She will be receiving ESY services. She will be getting all the related services she needs. And I didn't have to fight for any of this.

I wish it hadn't taken so many years to get to this place, but I am so very grateful that we are here now. I'm hopeful for Ashley's future, and I know that other people are also. It really does a Mother's heart good!

So thank you, Selene, Angela, Scottie, Nancy, Dan, Maurice, and all the other participants. This is how education should work. I am proud of Ashley and I am proud of her IEP team!

Tuesday, April 5, 2011

If Only


Ashley’s elementary and middle school years had more downs than ups. Every single one of her teachers were inexperienced in how to educate a child with deafblindness. Some teachers gave it their best shot but still came up short, and others just decided to let the school year pass as quickly as possible hoping their role would end before my anger erupted.

But high school is different. Ashley is currently in the 10th grade, and for both this year and her 9th grade year, she has had a great teacher who is sincerely interested in learning all she can about deafblindness.

This teacher has completed several college level courses on deafblindness since she found out Ashley would be her student. She goes to every training she can find to hone her skills. And the benefit to Ashley is obvious. Ashley is doing very well in school, and her academic and social advances are obvious.

Here’s some text I got in an email from the teacher about Ashley’s upcoming IEP meeting:

"Also, you might notice that the accommodation page is lengthy. This is in part due to some wonderful information that I learned at my training. Robbie Blaha (our trainer and guru on the Calendar system) found that by putting how to work with a child that is deafblind in the accommodations page that everyone who interacts with the child knows exactly how to most effectively. It is very specific and consistent. Again, after looking at the accommodations, please let me if you have any other strategies that you think should be added or if there are some you feel need to be deleted or changed. Some of the goals I have kept the same as the overall goals are based specifically on how children should be taught and how to ensure that they access their environment. I did tighten up on the percent of mastery and communication. "

Whoa! Everyone working from the same page? Expecting more mastery and communication? Asking my opinion? I feel like I’ve died and gone to Heaven!

I can just imagine how much farther along Ashley would be had she had this type of support through all her elementary and middle school years. Now, here’s hoping we can pack in enough education in the high school years to truly pave the way for Ashley’s success.

Friday, February 4, 2011

Finally


I don't know if my school district is getting easier to deal with or if I am giving up the battles...or something in-between. But for today, I am going to go with the thought that the school district is improving.

The IEP meeting for my oldest daughter, Jessica, was held Thursday afternoon. Since Jessica will be 21 years old this year, we're in the home stretch of the educational process and moving into the transition process full throttle. I've had and actually still have issues with the agency that will support Jessica's employment efforts in the future, but I must say that the school district and the IEP team really stepped up to the plate today.

The IEP is good, really good and addresses all my concerns about transition. Though I didn't ask for an assistive technology eval, one was conducted, and the AT representative had a whole bunch of great ideas. And get this - Jessica is getting an IPad provided by the school district! She will use it to develop a calendar, practice some educational skills, and use it to record important information.

Everyone on the IEP team seemed to care about Jessica and what her future holds, and they really listened to my concerns and suggestions.

Why couldn't this have happened 12 years ago, and for all my other children with IEPs? I can't go back and change anything in the past, so I am going to just relish that things are going well now. If I dwell too much on how much further along my children could have been educationally, I will miss out on the enjoyment of the positive things that are happening now.

So thank you IEP team, thank you for proving that we can all care about our children's future.

Tuesday, February 1, 2011

Change in the Air?

Ronnie received a very nice card in the mail last week from our county school's superintendent. I thought I must have been abducted by aliens and transported to another universe where schools really cared about their students.

The card said congratulations and had a personal note that said, "Keep up the SUPER work and effort." It was personally signed by Dr. Pat Russo, the Henrico County School Superintendent. Enclosed was also a copy of the article about Ronnie that appeared in the newspaper at the end of December.




I was very impressed that Dr. Russo took the time and cared enough to send the card. Dr. Russo is the third superintendent that my school district has had since my children started attending school. Neither of the first two superintendents would have even thought of doing something as nice as sending a card.

So, kudos to Dr. Russo, and here's hoping for some more positive change in the school district!

Thursday, September 16, 2010

The Wrongest of the Wrong


I have crossed paths with way too many people who form an opinion about a person with severe disabilities based on what they see when looking at the person. The opinions usually center around pity and even more abhorrent, the belief that the person with the severe disability is incapable of learning, communicating, and loving, to name just a few things.

What is particular distressing is when that person forming the opinion is in a position of responsibility in a school system.

I’ve written many, many times in the past about not understanding how educators start their careers with the belief that all children can learn and are capable but after a few years, begin to ‘turn off’ those beliefs when it comes to students with severe disabilities. It seems to me (and this is based on my personal experiences and the personal experiences of other parents with whom I have spoken) that this switch to feeling differently about students with severe disabilities comes when the teachers move into administrator roles.

The administrator’s justification, again in my experience, is that the severely disabled student costs a whole lot to educate with very little return on the investment. When that attitude comes down from the administrator to the classroom, the results, as you may imagine are disastrous for our children with significant disabilities.

Let’s look at one example that happened just this week.

Brooke started middle school this year. Everyone in her school environment is new to her and she is new to them. Brooke’s mom did an excellent job of introducing her daughter to the new staff. She emphasized Brooke’s special skills and shared an immense amount of information about the progress Brooke has made in the past and is anticipated to make in the future. But Brooke does have severe disabilities.

Brooke uses a communication device – a very expensive communication device that her mother did not ask the school to provide. Brooke’s mother provided it herself and makes sure Brooke has it every day when heading off to school. This particular device has been a real boon to Brooke’s communication, and Brooke loves using it.

The assistive technology guru for Brooke’s school visited Brooke’s classroom this week and observed Brooke using her communication device. His comment? The device was way too complicated for Brooke and a waste of taxpayer money. (The device was provided by Medicaid after a long and difficult fight to justify it as the correct device for Brooke).

Mr. assistive technology guru made this comment in front of other school staff, the same school staff that Brooke’s mom had worked so hard to convince that Brooke was indeed capable. The pressure and opinions from above are again making their way into the classroom. Opinions and beliefs will be altered and Brooke will be the loser in this game of one-upsmanship.

This, in my opinion, is just one of the things that is so very wrong with our public school systems. However this one affects the most vulnerable of students – students who have to work incredibly hard every minute of every day just to prove their worth to people like Mr. assistive technology guru.

To say this is wrong is one of the biggest understatements I have ever made.

Friday, August 20, 2010

Suggestions


Yesterday was the last day of ESY (extended school year) services for Ashley. For the last seven weeks, she has gone to school Monday through Thursday from 8am until noon, all in an attempt to keep her skills from regressing. The actual classroom services were largely a waste of time, but that is not what this blog post is about. This post is about school bus services.

Yes, I know, I have written many times in the past about the issues surrounding bus transportation in my school district. Well this post is not going to dwell totally on the negative. Bus services were, for the most part, excellent this summer. They did however start to fall apart this last week of school. And, I have a few suggestions so that doesn’t happen in the future.

The important and very positive thing about bus services this summer was that Ashley had the same bus, the same bus driver, and the same bus aide for six out of the seven weeks. That meant she could build a relationship with them, and she knew what to expect each day. She saw the same children on the bus each day, and the arrival and return times were very consistent. The driver and the aide took the time to talk to me and to get to know Ashley, and most mornings, that meant she skipped happily off to board the bus.

During this last week of school, the regular driver and aide were scheduled to attend training. That meant new staff – people who knew nothing about Ashley, people who were changing things up. And, as most parents of children with disabilities know, changing things up can be a minefield – and it was for Ashley.

So, rather than going on and on with my complaints, today I have decided to offer some suggestions!

First, I acknowledge that my school district really does want to provide acceptable transportation services. I also acknowledge that bus staff have lives too and must sometimes be out sick, out for training and other such stuff. What I would like my school district to acknowledge is that changes, even minor ones, can be very disruptive for many students with disabilities.

For example, some students like to sit in exactly the same bus seat each day. Making that student sit in a different seat could set a day of distress into motion.

Some students like to sit alone and some like to sit with a friend, often a particular friend. Deny either that accommodation, and you may get cursed, hit, bitten, etc.

Some students like music on the bus – some don’t, but all usually want things to stay the same – music or not. Play music when it hasn’t been played before, or all of a sudden stop playing the music – or God forbid, change the station, and you could have several meltdowns.

Each student on the bus has special needs, and some of those needs involve seizures or other such medical conditions. New bus staff needs to know that, or a seizure may be viewed as negative behavior. Some students may be deaf, and if the bus staff keeps talking to them and gets no response, patience will be tested. Some students may have a comfort item that goes everywhere with them. If there is no safety reason for denying that comfort item on the bus, the staff needs to know not to touch it.

These are just a few examples, things which I think could be resolved purely with communication. How hard would it be to have a diagram of the bus seats posted on each bus? Use an erasable marker to show which seat each student prefers to sit in.

Have a one page/one paragraph summary of each student’s likes and dislikes. I’m sure most parents would be happy to provide this. Keep that information in the bus, and require substitutes to read it before leaving the bus garage.

Just a few short minutes in the morning and afternoon for a substitute driver or aide to review information could make for happier students, happier parents, and an easier job for bus staff and teachers.

Do you have any other suggestions for improving school transportation and keeping everyone informed?

Friday, August 13, 2010

Just Wondering


We parents of children with disabilities spend a great deal of time advocating for our children. And, that advocacy often involves some sort of inclusion for our children with their non-disabled peers. We will say that we long for the vision of all children, regardless of ability level, playing together, learning together, just generally being one big happy group. But what about within the world of disabilities – do we advocate for that same level of inclusion? I’m not so sure…

I’ve noticed over the 13 or so years that I have had children receiving special education services in my school district that even within the disability world we tend to segregate.

Children with milder disabilities, even some with invisible disabilities, do not socialize or learn with children who have severe disabilities. Parents of children with Down Syndrome, for example, usually win the battle to have their children educated in the general education classroom. The children move freely among their non-disabled peers. But my children with significant or severe disabilities are kept in separate classrooms, often in separate areas of the school, using separate lunch tables, and with limited or no access to their non-disabled peers. That seems to be ok with those parents of the Down Syndrome children. But it usually is not ok with the parents of the children with severe disabilities.

And then there are those times and events that include children with emotional or behavioral issues. Parents of children with disabilities that don’t have those issues can often be seen drawing their children closer, away from the ‘wilder’ children. Or, parents of children with Deafness will often only facilitate socialization only with other Deaf children, relying on the whole Deaf Community argument for their rationale.

More and more, I hear about ‘Autism’ classrooms. Are we sure that isolating children with Autism will make their adults lives easier and happier? Are we afraid to have children who are blind, or have ADHD, or who have orthopedic issues interact with the child with Autism? I know that I have heard many, many times that “I don’t want my child around that child with Autism. He will learn even more negative behaviors.”

Umm….So is inclusion only good when it suits us – when we think our children with disabilities will learn positive things from others? Are we being a tad hypocritical?

What do you think?

Thursday, June 10, 2010

Who's Really Wearing the Cranky Pants?


Although it rarely happens now, not too long ago the only reports that came home from school about Ashley were ‘bad news’ reports. Most of the time, they spoke of her negative behaviors. She was described as being in a bad mood all day – being uncooperative, and one of my all time favorites, non-compliant. (I wrote a long time ago about that compliance thing…).

But the child I would see at home was completely different. She was pleasant, smiled and laughed a lot, played with her siblings, and was just a joy to be around.

So why were things so very different between school and home?

What I figured out a long time ago about Ashley was that her feelings and actions took their cue from the feelings and actions of people, especially adults, around her. I’m sure this is true about most children with significant special needs, but I feel it is even more honed in Ashley because of her dual sensory impairment (deafblindness).

Ashley can read my moods and feelings extremely well. She was able to when she was very young, and she continues today with that skill. She’s not using visual cues to pick up on my moods and feelings – she can’t see me smile or frown or cry. She can’t hear a change in the tone of my voice – angry versus sad versus happy. But somehow she knows.

She knows when there is ‘drama’ in the house. She knows when I am feeling rushed or impatient, and when I am relaxed and happy, she is relaxed and happy. When she senses that I am sad or down in the dumps, she will snuggle or put her face just inches from mine and smile her biggest smile.

Somehow she knows.

So, could those school reports of negative behaviors and bad moods be more a description of the adults in her environment at school than a true reflection of what she was feeling?

Maybe, just maybe, Ashley is not the one who needed the functional behavior assessment and behavior intervention plan!

Friday, May 28, 2010

Season Over


Four children with IEPs. Six meetings in the last six weeks. But I am done for this school year!!!

It’s so interesting to me how different IEP teams conduct meetings differently. Now all these are in the same school district, a school district that is OCD about following the rules (except when they don’t).

For Jessica’s IEP, the team just passed the document around via email. We had our discussions via email, and appropriate changes were made. Then I signed the document electronically and sent it to school electronically.

Ronnie’s IEP meeting, the first held for him in this school district, involved 16 people and two attorneys. The attorneys were not for the reason you probably suspect, but for now, I can’t share anymore. The final result however was that 2 weeks later, a great IEP had been developed for Ronnie’s transition to his new school.

Ashley’s IEP meeting was pretty run of the mill. Of course, that has not always been the case, but I think we are finally re-establishing good working relationships. Until high school, her IEP meetings were always contentious, lasted hours, and often ended in mediation and once in due process. But this year was fine. She has a good IEP and next school year is looking to be a positive experience, much like this first year of high school.

Then, we had ESY IEP meetings for both Ashley and Ronnie. Again, no problems and good results.

Today I finished up with Corey’s IEP meeting. Corey’s meeting was only attended by me, the case manager, and a general education teacher. Of course, we were missing an administrator, but I was too tired of meetings to quibble about that. Corey’s meeting was interesting because of the contrast between Corey’s actual abilities and his motivation to do a good job, or even a passable job, at school. It’s tough to write goals and objectives when the primary reason Corey is failing 11th grade is lack of motivation.

Also, because Corey can’t plan and imagine a future any further than tomorrow, we did beef up the IEP with objectives requiring him to explore and consider life after high school. I am so worried that he will eventually squeak through high school, and then have absolutely no place to go. College isn’t looking likely. The military, his first choice, is even questionable. I proposed to the team that we hit hard on some vocational skills and they agreed. So, we ended up with another good IEP.

Other than all the time I had to take off from work, this year’s IEP season wasn’t too bad. But I am really, really glad it is over!

Tuesday, March 16, 2010

How Did That Happen?


What do you do if your child comes home from school with bruises, scrapes or other injuries that they didn’t have when they left for school?

When my son without disabilities was in elementary, middle and high school, I would just ask him if he came home with injuries – and he would tell me what had happened.

But for my children with disabilities, it’s a different story.

Jessica, for instance, can relate a story, but often that is just all it is. It’s difficult for her to remember what happened an hour before my asking, much less earlier in the school day. And, if someone at school or on the bus tells her to stop being a baby, or that the injury is not a big deal, she will say nothing at all.

I also have a tough time getting an answer from Ashley. She’s so used to bruises from running into things, that I don’t think she thinks twice about it. But very often the bruises I see at the end of the school day are obviously not from running into things. And then there are the scrapes and sometimes even cuts that I never get a call or note about.

So what do you do if that happens to your child who can’t tell you what happened? Do you send a note to school the next day asking for an explanation? And what if no one owns up? If your child is supposed to have an aide by their side all day in school, do you accept the answer that no one knows how the injury happened? What recourse do we parents have?

Thursday, December 3, 2009

Poor Little Sick Disabled Girl


I’ve warned Ashley’s teachers. Amy, Ashley’s intervener, has warned Ashley’s teacher. Yet they still fall for Ashley’s manipulation.

Yes, Ashley is very cute. Yes, that sweet smile will melt your heart and make you want to do anything you can to keep the smiles coming. Yes, your heart melts when she leans in to kiss your cheek and sign “I love you.” And yes, she knows exactly what effect she has on people.

Ashley wasn’t in the mood to go to school yesterday. It was a gloomy, rainy morning and she preferred to stay curled up on the couch next to me. But, when the bus arrived, her cute self had to get up and get on the bus. You see, I am somewhat immune to her antics. But the staff at this new school is not, and they are not heeding our warnings.

Ashley acted tired when she got to school. She kept putting her head down on the desk. When her well-meaning aide and teachers asked her what was wrong, she signed that her head hurt and her throat hurt. “Poor thing”, they thought and immediately carted her off to the clinic. They told the school nurse that Ashley just wasn’t acting like her normal cheery self. They, and the school nurse, decided she must be sick and then decided to call me to come and pick her up.

She had no fever. She wasn’t vomiting. She had no diarrhea. But because she just wasn’t “being herself”, she was allowed to lie down in the quiet, dark nurse’s office, and immediately she took a nap.

I arrived to get her. I woke her up, and the first thing I saw was her sly smile. Then came the giggle. She knew she had won – I was there and I was taking her home. (Once the decision is made by the school nurse that a child needs to go home, the decision will not be reversed.) It was amazing how much better she seemed as we walked to the car. And her good spirits continued through the afternoon and evening.

Ashley knows how to manipulate. Just because she has disabilities, it does not mean she is stupid. She is a teenager, and somehow very soon, her teachers and aides need to understand what she is doing.

Somehow I need to help them learn how to unwrap themselves from her little finger!

Today I am thankful that the rain has stopped and the sun is out. We haven't seen the sun much recently.

Monday, November 23, 2009

Teacher - No. Bigot - Yes


I went to the movies with Amy Friday night. She and I and about 300 squealing teenage girls watched New Moon. The movie was good but what happened before the movie was more interesting.

We arrived at the theatre almost an hour and a half before the start of the movie. Already a line had formed, and about 50 people stood in line before us. Soon after we joined the line, an older woman and her teenage daughter stepped behind us. The daughter was a whiner extraordinare, and the mother was one of those people who felt compelled to talk to everyone, stranger or not.

It didn’t take long for us to learn that the mother was a special education teacher in an elementary school in our school district. Amy shared that she also taught special ed, but in middle school. The mother immediately said she didn’t know how Amy did it, that the young kids were hard enough.

The woman then shared that she taught in the preschool special education program. In our school district that means that children with all types of special needs would be in her classroom, and all would be under the age of 5, kindergarten age.

We heard how difficult her job was – how tired she was at the end of the day – how ‘handling’ the kids was really tough. Amy commented that she believed in inclusion and that all students should be afforded similar opportunities, not locked away in separate rooms. The woman looked shocked, and said that some of her students would ‘kill’ the ‘regular’ students if they were put together. Again, just for clarification, her students would be age 2.5 to 4 years old.

I said nothing. I had to choose that option because otherwise I would have made quite a scene.

Anyone who has read my blog for a while knows how I feel about labeling students, having low expectations for those students, and especially how I feel about some of the so-called teachers in my school district. I had to keep quiet because otherwise I would have begun a conversation that would have made everyone around us uncomfortable.

I kept my anger at bay, but sadness consumed me – sadness that children at such a young age are already having their futures determined by people who don’t understand, who don’t care, and who, in my opinion, don’t matter. Yet those people have our children in their clutches at least six hours a day, 5 days a week.

Today I am grateful that throughout her educational journey, Ashley has had two people who 'get it' - Amy and Mrs. Marsh

Thursday, October 29, 2009

Am I Missing Something?


Although I have pretty much given up on my school district providing an education for Ashley, some of the school staff are trying, and I do appreciate that. At the beginning of this current school year (Ashley's first year in high school), two folks from our state's deafblind project visited the school and did a training for the school staff. I'm really hoping that helped because usually teachers and other staff just don't get the whole deafblind thing.

For example, Ashley's 2nd grade teacher came to an IEP meeting and in all seriousness said, "Ashley is a visual and auditory learner."

Still, I give this year's staff credit for trying harder than staff in the past.

However, one of the things that someone, perhaps the speech therapist, is working on with Ashley is getting her to sign jokes. I'm not sure of the reason why - perhaps to fit in with her peers more or maybe to work on some more signs - I'm just not really sure. But, at the end of the school day, the jokes come home written out on a piece of paper, and attached to the joke paper is a page with pictures of the signs that were used.

This week's joke was, "knock knock - who's there? - train - train who - train makes the flowers grow".

I get it - train - the rain - but let's think about this from Ashley's perspective.

She can't hear - she's deaf. The whole point of the joke is hearing the sound of the word train. So sure, she can sign all the words - but it makes no sense to her.

I wonder if the school staff understands why she is not laughing.

Today I am thankful that tomorrow is Friday :)